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Anyone dealing with Atypical Ductal Hyperplasia (ADH)?

Breast Cancer | Last Active: Sep 11 9:29pm | Replies (227)

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@debbie2721

That sounds like the standard treatment. You will be screened often which is a good thing. I have the same diagnosis but I am past the child bearing age. I was given another drug first but had to stop because of terrible leg pain. You should do well and good luck.

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Replies to "That sounds like the standard treatment. You will be screened often which is a good thing...."

I am post menopause and had the same thing biopsy with ADH, and then a lumpectomy. I saw an oncologist and started Tamoxifen. I was on it for about six months at half dose but still had some of the side effects... weight gain, acne, joint pain.

I had to stop taking it for a few months because I needed surgery for a different issue.

A few months later I had a pelvic MRI done and had an enlarged ovary and thickened uterus. This is a small, low risk possible side effect of Tamoxifen. I ended up having a hysterectomy that revealed a polyp on my uterus that was hyperplasia. Luckily caught before it might have become cancer.

Again, the chances of that happening are low but something to consider discussing with your oncologist. I am going to try Raloxifene. It's not quite as effective as Tamoxifen but I have chosen not to take Tamoxifen again since I'm apparently sensitive to it.

There are many people who do very well on Tamoxifen.

Wishing you all the best!!