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DiscussionImmediate and severe Tymlos side effects.
Osteoporosis & Bone Health | Last Active: Dec 17, 2024 | Replies (23)Comment receiving replies
Replies to "Hi @beanieone it is so wonderful that you had great gains after 8.5 months of Tymlos..."
Good morning, @mayblin, @windyshores, and all of my fellow OP-ies.
Here’s the rundown on my treatments, so far . . .
Reclast - 2011 - 2014 (my recollection is that I also had an infusion in 2015), followed by a drug holiday until 2020 with an additional dose in 2021. So that’s six . . . or seven infusions . . . so far. DEXA numbers during this time remained pretty stable.
After Tymlos and Evenity, I chose Reclast for my maintenance drug; most docs will prescribe Prolia which I didn’t want to start, thanks to posts in this forum. After much discussion with my - new - rheumatologist, he honored my wishes, with a stern warning that femur fractures could be a possibility. Considering that and everything else, I had another infusion at the end of July. For me, it was better the 😈 you know (Reclast) than the 👿 you don’t know (Prolia)!
So, it looks like I’ve had either 7 or 8 Reclast infusions, depending on whom you believe. It also means that my first holiday was five years, my second was a mere 3.
My BMD gains were a whopping 28.2% in my spine and 8.1% for dual femur. I am now at -1.0 in my spine, so yay for me! I also seem to remember something about the correlation between fractures and “extra” bone built at the site of the fracture, which can show up on a DEXA - anyone?? This may be disproven by the fact that my DEXA in 2022 after several frax had not shown a great improvement.
I still need to be “careful” about activities that put undue stress on my femur(s) and ever mindful about pain that may indicate a fracture.
I hope this answers everyone’s questions about my experience with Reclast; if not, feel free to comment and/or ask.
TGIF! Happy day, all. Cheers!
@beanieone some of us are very interested in doing Tymlos or Forteo again, after Reclast and eagerly await your response!