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Immediate and severe Tymlos side effects.

Osteoporosis & Bone Health | Last Active: Dec 17, 2024 | Replies (23)

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@mayblin

Hi @beanieone it is so wonderful that you had great gains after 8.5 months of Tymlos plus 12 mo evenity. Could you share your bmd % gains if you don't mind?

I'm also curious, it sounded like you had Reclast before your anabolics therapy (tymlos and evenity). Could you share how many doses of Reclast you've had, and the length of drug holidays, if any, before you started Tymlos? Thanks a lot!

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Replies to "Hi @beanieone it is so wonderful that you had great gains after 8.5 months of Tymlos..."

@beanieone some of us are very interested in doing Tymlos or Forteo again, after Reclast and eagerly await your response!

Good morning, @mayblin, @windyshores, and all of my fellow OP-ies.

Here’s the rundown on my treatments, so far . . .

Reclast - 2011 - 2014 (my recollection is that I also had an infusion in 2015), followed by a drug holiday until 2020 with an additional dose in 2021. So that’s six . . . or seven infusions . . . so far. DEXA numbers during this time remained pretty stable.

After Tymlos and Evenity, I chose Reclast for my maintenance drug; most docs will prescribe Prolia which I didn’t want to start, thanks to posts in this forum. After much discussion with my - new - rheumatologist, he honored my wishes, with a stern warning that femur fractures could be a possibility. Considering that and everything else, I had another infusion at the end of July. For me, it was better the 😈 you know (Reclast) than the 👿 you don’t know (Prolia)!

So, it looks like I’ve had either 7 or 8 Reclast infusions, depending on whom you believe. It also means that my first holiday was five years, my second was a mere 3.

My BMD gains were a whopping 28.2% in my spine and 8.1% for dual femur. I am now at -1.0 in my spine, so yay for me! I also seem to remember something about the correlation between fractures and “extra” bone built at the site of the fracture, which can show up on a DEXA - anyone?? This may be disproven by the fact that my DEXA in 2022 after several frax had not shown a great improvement.

I still need to be “careful” about activities that put undue stress on my femur(s) and ever mindful about pain that may indicate a fracture.

I hope this answers everyone’s questions about my experience with Reclast; if not, feel free to comment and/or ask.

TGIF! Happy day, all. Cheers!