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@melissaguon

I was diagnosed seven years ago with primary Dysautonomia by a specialist who tested me in Chicago. I went to Mayo recently and was told by the autonomic specialist that he did not find Dysautonomia. All my symptoms are the same. I am starting at the beginning again and incredibly frustrated plus anxious and depressed that I don’t know what is causing me to not be able to function. Has anyone else had experiences like this?

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Replies to "I was diagnosed seven years ago with primary Dysautonomia by a specialist who tested me in..."

Hi @melissaguon, welcome to Connect. I'm sorry, you must feel a little confused by that news. What was the main reason for going to Mayo - to confirm your existing diagnosis, or other issues?

If you're comfortable sharing, it'd be helpful to understand more about your symptoms and health journey. How is your functioning impaired?