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Mixed results 1 year after Forteo: What are your thoughts?
Osteoporosis & Bone Health | Last Active: Aug 15 2:11pm | Replies (86)Comment receiving replies
I’d appreciate hearing comments/ negative repercussions after stopping Prolea. I’ve taken Prolea for 6 years, Endo says I must take it forever but I’d really like to stop because for last 2 times I have had progressively worse side effects…severe fatigue is impossible. Normally I sleep 6-7 hours, but now sleeping 11-12 hours each night. I’m walking at least a mile a day, sometimes up to 4 so this new fatigue is a real problem for accomplishing much at all. I do not wish to risk the problems with stopping it either but this is now a quality of life issue too.
Thank you .
Replies to "I’d appreciate hearing comments/ negative repercussions after stopping Prolea. I’ve taken Prolea for 6 years, Endo..."
Hi @shani, there is a good thread started by @formisc discussing stoppage of prolia, lots of info worth reading:
https://connect.mayoclinic.org/discussion/support-for-those-quitting-prolia/
I think its critical to make sure you have an endo working with you at all times, preferably someone experienced with prolia withdrawal. Have a plan and maybe a plan B as well should a problem arises. This thread started by @snoopyluv345 discussed something unexpected happened during prolia withdrawal and what to do about it:
https://connect.mayoclinic.org/discussion/can-i-receive-two-reclast-infusions-in-less-than-a-year/
Best wishes!
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@shani definitely speak with the endo doctor and your primary doctor. We don't know what's causal. I definitely have fatigue (fell fast asleep in the dentist chair this week!) It can be many other things. Ask for them to run blood tests, adrenal tests and hormone tests. (didn't know how old you are). Aging and walking, cardio alone will do it after 6 years!
You can also stop, with your doctors guidance, for a couple months. Take a break and see if you feel any better so you can narrow down if it is the Prolea.
I am sleeping very good since I've been on the Tymlos. I don't sleep longer but I definitely sleep better.
Try some LCarnitine - its a supplement and it totally works for me when I get too fatigued. Also B12 - I take Vitamin Code for women and I also inject B12. I am highly active at 67 and I really get tired. I don't think we know when to slow down....
if I don't do my LCarnitine and keep my B12 inline I am on the couch at noon with a snooze... I hate napping! And I will still sleep all night! so bizarre.