← Return to (MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

Discussion

(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

MAC & Bronchiectasis | Last Active: Oct 29 5:15pm | Replies (9350)
Comment receiving replies
@lindabourassai

I have MAC which was diagnosed in 2016. I am unable to tolerate the big 3 or Arykace as they cause me to be bedridden. I went to National Jewish Hospital in Denver where they did all of the tests possible but did not find anything useful. Since I cant tolerate the meds the only treatment they suggested that I do was To nebulize with 7% salt. Has anyone else had the same diagnosis and treatment?

Jump to this post

Replies to "I have MAC which was diagnosed in 2016. I am unable to tolerate the big 3..."
Nancy C | @nac1 | Aug 16 10:50am

I have been nebulizing for two years. No drugs. Also
Eat well and exercise. Very little sputum. Coughing spells every now and then. So far so good. Good luck.

VIEW AND REPLY