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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

MAC & Bronchiectasis | Last Active: Nov 21 5:21pm | Replies (9354)
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@lindabourassai

I have MAC which was diagnosed in 2016. I am unable to tolerate the big 3 or Arykace as they cause me to be bedridden. I went to National Jewish Hospital in Denver where they did all of the tests possible but did not find anything useful. Since I cant tolerate the meds the only treatment they suggested that I do was To nebulize with 7% salt. Has anyone else had the same diagnosis and treatment?

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Replies to "I have MAC which was diagnosed in 2016. I am unable to tolerate the big 3..."
Nancy C | @nac1 | Aug 16 10:50am

I have been nebulizing for two years. No drugs. Also
Eat well and exercise. Very little sputum. Coughing spells every now and then. So far so good. Good luck.

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