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DiscussionMy Bone Marrow Transplant (BMT/SCT) story: Will you share yours?
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: 3 hours ago | Replies (581)Comment receiving replies
Replies to "Tomorrow (8/16/24) starts day -7. I feel unprepared and anxious."
Good morning, @caregiverx2 This sounds so trite, but the first thing I want you to do when you read this message is to pause, take a couple of deep, slow breathes…exhale slowly through your lips. It’s a simple but successful way to calm the jitters.
Understandably, tomorrow will be a big day for both you and your husband. It is the start of his countdown to his second chance at life. This opportunity to have a stem cell transplant may give him and you, many more healthy years together. So believe me, I understand the underlying anxiety you’re feeling today as you approach day -7.
I think you’ll find the first couple of days won’t change much in the scheme of things. Pre transplant conditioning will take place daily with an infusion of meds, usually as an outpatient procedure. If I remember correctly at day -4, I as admitted for the last 2 days of chemo, then day of rest/flushing fluids and then Day 0.
The actual infusion of stem cells is very anticlimactic. It generally takes less than 20 minutes or so. You’re at Mayo where SCT’s are outpatient procedures so by the next day after the infusion, your husband most likely will be back with you at your place of lodging.
That can feel daunting but honestly, you're never far from the clinic. You’ll both return daily for blood work and possible infusions of meds or supplements like magnesium.
And, if there is EVER an issue, you have numbers to call the BMT/SCT team at the clinic 24/7 to get guidance. I did have a small issue about 7 days in and was readmitted immediately to the hospital. I promise you, that the teams at Mayo are exemplary with taking care of their transplant patients!! They will do everything in their power to keep your husband safe and comfortable. He’s in the very best of hands!
Has he had his port installation yet? What is worrying you the most?