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ADT/ ORGOVYX Day 45; Told Radiation Is Next

Prostate Cancer | Last Active: Aug 18 5:01pm | Replies (18)

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@northoftheborder

It sounds like you need a better radiation oncologist. I respect that they're busy, but you have a right to information, since it's your life.

I'm also on ADT "forever" (initially Firmagon, now Orgovyx), together with an ARSI (Erleada). After a couple of years, they did get easier to tolerate for me — part of that was the side-effects getting milder, and part was me getting used to them and recovering enough from the spinal metastasis to get active again.

I hope you see a similar improvement, though I understand you're dealing with a different set of complications. As I mentioned in another thread, our cancers are coach-built, not mass-produced — every one is different, so what you hear from the rest of us is just a range of possibilities to keep in mind.

Good luck.

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Replies to "It sounds like you need a better radiation oncologist. I respect that they're busy, but you..."

I'll add that my Cancer Centre (in Canada) has a patient-support line that I can call any time during working hours to talk to a trained oncology nurse, who answers many questions and can also pass them on to my oncologist and get back to me if needed.

If your facility has something similar, I strongly suggest taking advantage of it. I had a lot of good doctors during my 3 1/2 months in hospital, but I also learned that nurses tend to be better listeners