1. < Neuropathy

Winsantor latest info.

Posted by hippocraticoath @hippocraticoath, Aug 11 1:54am

Hi all,
I came across Wi santors drug WST-057 on the internet which i understand is supposed to help with PN.
It’s frustrating to find progress info on the drug; most are atleast 2-3 years old; ironically i’ve not heard back from my inquiry for them as well searched dying the internet; i’ve read that they’re trying to be ethical by making it affordable and accessible to everyone but i can’t even find current progress even from their website and i’m beginning to think the pharceuticsl industrial complex got to them.
Anyone else?

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bb0753 | @bb0753 | Aug 14 7:32pm

So sorry you are going through this. I havevread that some doctors do IVIG treatment which is supposed to be for autoimmune. I know nothing about it but have heard some say it helped. I certainly hope you find some help.

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1 reply
hippocraticoath | @hippocraticoath | Aug 14 8:10pm
In reply to @bb0753 "So sorry you are going through this. I havevread that some doctors do IVIG treatment which..." + (show)
@bb0753

So sorry you are going through this. I havevread that some doctors do IVIG treatment which is supposed to be for autoimmune. I know nothing about it but have heard some say it helped. I certainly hope you find some help.

Jump to this post

Thanks.

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artemis1886 | @artemis1886 | Aug 17 3:09pm

Win star has me so frustrated we will not go there. The testing group is only for diabetics. It is a cream so if this neuropathy has moved into your organs it’s absolutely worthless. My neuropathy is in my bladder and heart.

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1 reply
hippocraticoath | @hippocraticoath | Aug 17 3:27pm
In reply to @artemis1886 "Win star has me so frustrated we will not go there. The testing group is only..." + (show)
@artemis1886

Win star has me so frustrated we will not go there. The testing group is only for diabetics. It is a cream so if this neuropathy has moved into your organs it’s absolutely worthless. My neuropathy is in my bladder and heart.

Jump to this post

So sorry Artemis, I’m afraid it has gone deeper than my skin as well.
Hopefully, they can reconfigure it so that it reaches deeper into the body beyond skin deep.
Hang in there.
Are you taking some of the current purported treatments such as ALPHA Lipoic Acid, , specifically the R form, etc?

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1 reply
artemis1886 | @artemis1886 | Aug 17 4:27pm
In reply to @hippocraticoath "So sorry Artemis, I’m afraid it has gone deeper than my skin as well. Hopefully, they..." + (show)
@hippocraticoath

So sorry Artemis, I’m afraid it has gone deeper than my skin as well.
Hopefully, they can reconfigure it so that it reaches deeper into the body beyond skin deep.
Hang in there.
Are you taking some of the current purported treatments such as ALPHA Lipoic Acid, , specifically the R form, etc?

Jump to this post

I am allergic to ALA. I swelled up huge. My kidneys stopped working .. I am allergic to over 50 different medications including lyrica and neurotin. They are trying to get me approved for IVIGtherapy.

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