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Anyone with Pseudoangiomatous stromal hyperplasia (PASH)?

Breast Cancer | Last Active: Aug 26 12:42pm | Replies (10)

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@auntieoakley

I would like to tell you both @fronterae and @kato902 that I took 5 years of tamoxifen and really the only side effects I had were related to the lack of estrogen, not the drug. Hot flashes, dry skin, etc….. there are tens of thousands of women on this drug. Unfortunately the forums are full of those that do have issues, because the ones that don’t have issues also don’t post about it.
The best advice I was given was to try it and see if I could tolerate it because it would lower my risk of dying from breast cancer. You can always revisit this if you do have issues. I am not going to say it was perfect but I believe the cost vs benefit was worth it for me.
I don’t know what all you are dealing with from the diagnosis, but I am praying for a good outcome for you.
You both discussed surgery and tamoxifen, are there other treatment options for you?

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Replies to "I would like to tell you both @fronterae and @kato902 that I took 5 years of..."

Hi
Thank you for the well wishes but what is most difficult is finding information on PASH. Down side is I’ll have to wait to have a discussion with the surgeon and see what options there are. The tamoxifen was mentioned to me prior to being diagnosed with PASH. I’m allergic to so many meds that I carry a list with me plus I had a complete hysterectomy when I was 26 and have been on estrogen ever since and still have issues with hot flashes. I always attempt to educate myself to the fullest and in this respect I’m able to be my own advocate and able to have an educated discussion with my physician but this time I have a minimal education on PASH. I’ll update after I have my visit and results of this morning MRI.