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I feel like start running and not look back!

Caregivers: Dementia | Last Active: 19 hours ago | Replies (124)

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@joanhed

You know I have joined support groups online before and no one was honest. It really made me angry. But this Mayo Clinic group is wonderful. I appreciate hearing about all the anger, unvarnished chaos and fear that we caregivers experience. I feel less alone. My husband used to be a kind, generous, sweet man. No longer. He gets frustrated when he screws something up or can't do something, which is always. Then he screams at me in baby talk which sets my hair on end. This is the death of our marriage.

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Replies to "You know I have joined support groups online before and no one was honest. It really..."

@joanhed I feel the same way about this group. When trying to discuss our situation with friends or family I think I'm coming across as a complainer or even embellishing the events we experience. No one who hasn't been through this understands the disorientation that comes with personality changes with no warning. I can walk into the room and find that he's angry with me for some imagined reason. A few minutes later he loves me more than words can say. Then there's the fear that I'll leave him and he'll be lost. His tears at those times break my heart. I do worry about him if anything should happen to me. He won't let anyone else help him with anything so caregivers have been pointless. So much time lost for both of us, yet here we are. Feels hopeless sometimes.