Hi All, I too see Dr. Sonbol at Mayo Arizona and love him and the team. I was diagnosed with an unknown primary in January 2021 with mets to liver. I started Lanreotide immediately and was just taken off that a month or so ago (not stopping progression and no carcinoid symptoms). I did PRRT (4 cycles) starting in summer of 2021 with great results (shrinkage of existing tumors) and had no progression of disease until summer 2024. All the areas treated with PRRT still show no change, but a couple of new areas of concern emerged with scans in June). Started Everolimus 5 mg and did well (except for mouth sores) for one month when we increased the dose to 10mg. Within about 10 days of 10 mg I was having significant side effects and resulting blood work showed anemia. Back to 5 mg starting today and with my first follow up scans in September. I had few side effects with PRRT (mostly fatigue and slight anemia by the end of treatments), and a few with lanreotide, but nothing that couldn't be handled with changes in eating habits. Dr. Sonbol's team were incredibly helpful with all and the Phamacologists (especially Jennah) have just been amazing helping me through the dosage issues with Everolimus. Encouraged to see so many on here with good results from Everolimus.