Hi - I have been on zithromax, ethambutol, and rifampin for 1 1/2 years, and additionally clofazimine for a year with no improvement in my MAC infection. Sensitivity tests show that my infection is sensitive to all these drugs. I fortunately have tolerated the treatment well. I recently started Arikayce in addition to oral meds, and lost my voice completely by day 7, despite pre-treating with a glycerine and water gargle, and post-treating with saline gargle and a hot drink. I was instructed to stop Arikayce until my voice returned to normal and then try the 3x/week regimen, which I hope I can tolerate. Any thoughts, suggestions, or similar experiences?
Thanks!