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Paediatric Crohns and kidney stones

Autoimmune Diseases | Last Active: Aug 21 1:48pm | Replies (4)
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@johnbishop

Hello @npleyland, I can understand your concern and wanting to get some answers. Hopefully members with experience can respond. Mayo Clinic does have some information on Individualized care for pediatric kidney stones - https://www.mayoclinic.org/medical-professionals/pediatrics/news/individualized-care-for-pediatric-kidney-stones/mac-20568954. I also found this short video that may be helpful.


You mentioned your daughter is being seen by a Gastro IBD team. Have they discussed any follow up testing?

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Replies to "Hello @npleyland, I can understand your concern and wanting to get some answers. Hopefully members with..."
npleyland | @npleyland | Aug 14 12:45pm

Hi thanks for this and we have surgery in 5 weeks to remove a stent and stone in one kidney so expect there will then be discussions about additional tests to monitor. My biggest concern is whether there is a link to her Crohn’s disease or her crohns medication that is causing the stone formation as they appear to be forming quite quickly in a period where we are supposed to be nearing crohns remission

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