Spacer replacement 4 years after TKR

Posted by doodles418 @doodles418, Feb 8, 2023

Has anyone been told their plastic spacer is too thin and should be replaced? My knee has been having all kinds of pain, pinching and burning sensations for months now. Xray shows implants are stable, but the spacer may be too thin and gives me the unstable feeling. Surgeon suggests going in and replacing, but not a fan of surgery. Anyone have it done? Successful? Wished they didn't? Thanks for any comments.

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@prawleyn

This is my last entry. I am nearly 8 months out from the poly exchange and still having problems. In short, it didn't work. The doctor recommended starting over again with new parts that include stabilizers. I am facing giving up a lot of stuff in my life unless I can get it better. I have know way of telling if the problem is my knee or the doctor. I am looking for a new doctor to get a fresh set of eyes on it. I am hoping to avoid surgery and I plan to spend this summer fall in the gym and other stuff like steroids. I may have to get a second revision and start over. But I don't see what difference that may make unless someone can figure out why it did not work to start with. Another surgery could also make it worse. I have to be very careful about any new surgeries now I feel. Well good luck to everyone and wish me well!

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I am sorry you have to go through so much to get your knee back. I hope a second opinion will bring new light to your situation.

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@hopelives

Thank you all for sharing your stories. I'm also considering a spacer replacement surgery. I can sit and rattle my knee side to side very easily with little effort and with a great deal of sideways movement, clicking, and knocking sounds. I had total knee replacement (TKR with mobile bearing unit) on my left knee at age 46 in 2018, which included a lateral release during the procedure, a shaving of tissue on the lateral side of the knee in order to put the patella back in place. Prior to TKR this knee had several arthroscopic procedures as well as one ACL reconstruction over many years. There has been a great deal of lateral movement (float, play) in the joint ever since the TKR, along with associated pain and swelling. Range of motion is full for a TKR with extension reaching to 0 degrees, yet pain at flexion endpoint, which is probably common with TKR. I am naturally very flexible. All X-rays and nuclear bone scans look beautiful. If anyone has had similar issues, I would greatly appreciate your feedback, especially concerning the consideration for spacer replacement. Thank you.

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I got a TKR 2 years ago and have been in pain from the start and have been to 5 different doctors trying to find a solution apart from a total knee replacement. All they could offer was a total replacement. I knew there had to be an alternative. I was to the point where I was just going to put up with the pain…until my knee began locking where I couldn’t extend my knee, had severe pain and I couldn’t put weight on it. I finally found a doctor who suggested replacing the spacer because the one they used was too thin. Honestly, I’m giddy with excitement! No one ever even suggested that!

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@robinb504

Thanks I can't get a dr to tell me anything they all say they can't find why I'm hurting I shouldn't be one suggested a physcritorist I'm like really was an a hole it's been almost 2 years I think if I was faking it I'd given up my now

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I can really relate to what you’re going through! It’s been 2 years since my TKR and I thought if one more doctor looked at me, shrugged their shoulders and said, “I don’t know what the problem is,” I’d lose my mind. It was that or I was told the TKR failed and I needed to start over. The thought of doing that gave me so much anxiety that I had decided to just live with the fact I was in more pain than before I had the surgery. That is until my knee started locking. I finally (after seeing 5 different doctors) found someone who suggested the spacer my original doctor used was too thin. Not one of the other doctors ever suggested that as a possibility. Finally hope! Meeting with the surgeon in two weeks to discuss moving forward with the spacer replacement.

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@prawleyn

Hello - I am 15 weeks out now from this procedure. Thankfully no infections. I felt I had to do this surgery as I could not walk very well. There is no way I can know if you could avoid it somehow. I did get a second opinion and he also recommended it.
I am still having pain and swelling but the knee does feel more stable. I am thinking this will resolve this month - that would be 20 weeks. As they do not cut bone or muscle for this operation, I would think it would heal sooner. But there are possible reasons it might take longer - they removed scar tissue, I am older, the muscles need time to adapt to the thicker spacer. Stay tuned for an update if you - or anyone else - is interested.

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Did you have scar tissue removal along with the spacer surgery? How was that recovery if you did. Anticipating such a measure - am at 16 weeks post term/8 weeks manipulation. Scar tissue very thick affecting ROM.

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Not a fan of surgery either…I’ve had way too many…but also not a fan of doing a repeat TKR. That was what at least 4 different surgeons told me. I was ready to just live with the pain until the knee started locking…like something was getting caught in the joint. I finally found a surgeon who suggested the spacer replacement…a much better alternative…I hope.

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To all those who have replied, I understand. I am seeing doctors and universally they are saying "start over". I got a second opinion before the spacer revision and he also recommended changing the spacer. I went back him 8 months later and he said the same thing - "start over". He gave me a steroid shot which helped and drew some fluid to check for infection. It was clear. The second doctor is running tests and trying to find the cause for the failure. He says we can't fix it unless we know what is wrong. If we can't figure out what is wrong then it is "start over". He says 3 things can usually cause this problem - infection, a loose part, or soft tissue. A blood test and bone scan were negative. He then aspirated the knee. This time the fluid was cloudy and there was some blood. That fluid is being tested now. I may have an infection or possibly gout - yes gout. I am hoping it is gout but that is too easy lol. If it is infection then that is terrible but so is my knee at this point. All of this is to say that spacer sounded like the right way to go. But in the end I am worse than the original TKR. It is not terrible pain but it is more pain limiting me and a problem. I also hope to limp my way to a better place but I am not sure at this point that is possible. I get results this week and I will see another doctor next month. I am not going to rush into anything. I wish that the original doctor would have thought of testing before even suggesting the spacer. There are surgeons and there are doctors I guess.

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Thanks for posting this. I’m too having the same problem.

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@rggj

I too have severe thumping when swinging the knee back and forth. As you stated, my surgeon said the spacers could be replaced, but at this point (3 years out) I am not if a mind to do the procedure. The pain isn’t so bad that I can’t take it. I just tell people that my Tyrods need replacing. Good luck.

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So I’m having a similar situation. However, I find when I bend my knee it’s painful. And also, I can move like the joint from side to side. You can hear the clicking it pops all the time when I’m walking. Trying to decide if I should have the spacer fixed, I too like you don’t wanna have surgeries needlessly. I just wonder if it’s worth getting fixed

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@dgilcrest

I can really relate to what you’re going through! It’s been 2 years since my TKR and I thought if one more doctor looked at me, shrugged their shoulders and said, “I don’t know what the problem is,” I’d lose my mind. It was that or I was told the TKR failed and I needed to start over. The thought of doing that gave me so much anxiety that I had decided to just live with the fact I was in more pain than before I had the surgery. That is until my knee started locking. I finally (after seeing 5 different doctors) found someone who suggested the spacer my original doctor used was too thin. Not one of the other doctors ever suggested that as a possibility. Finally hope! Meeting with the surgeon in two weeks to discuss moving forward with the spacer replacement.

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Please keep us updated because I’m too exploring the same thing. I’m curious how long the recovery is. It is really disappointing. When you just start to feel normal and you have to think about another surgery.

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@bacbaa

Please keep us updated because I’m too exploring the same thing. I’m curious how long the recovery is. It is really disappointing. When you just start to feel normal and you have to think about another surgery.

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Unfortunately, it looks like if I do anything it will be a revision. It seems the doctor didn’t take into account that I had osteopenia and used the implant where the bone was supposed to attach to the implant. Apparently the extra space was caused by the implant sinking into the bone so the doctor doesn’t feel like the spacer will correct the instability. Also, the recovery is the same as an entire replacement. She feels replacing it with an implant that is attached with bone cement will correct things.

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