Good morning, @goodold Regarding getting things done, I had to alter my schedule and began to let nonessential chores fall by the wayside. I quit ironing, did laundry daily - often at midnight, and as I like to say began to see dust bunnies as pets rather than something that needed my attention. My sleep patterns also changed dramatically. Again, for me, just another life change due to the demands of being a caregiver.

We also changed to pull-up adult diapers for my wife. It was a sad transition but after earlier having my dad ask me to help him put on his diaper, it was just another change in caregiving demands. I also got a waterproof mattress cover as well as waterproof, very thin disposable pads for under my wife when she was in bed.

Every patient is unique but my wife, very early on, decided she valued quality of life over longevity and that guided our decisions for her care. We used this as our litmus test for whether or not to undergo certain procedures, changes, etc.

I'm always happy to answer any questions.

Strength, Courage, & Peace