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Has anyone had an enlarged bile duct as large as 1.1?

Digestive Health | Last Active: Aug 17 6:04pm | Replies (18)

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@lauramazhari

I have had 9 ERCP's in the past year and a half due to a recurrent blocked bile duct. The blockages aren't discovered until they get in doing an EUS that turns into an ERCP. I have daily nausea and pain that comes and goes in my upper right abdomen. I've lost 36 pounds since last August without trying. I now have a steel stent that was helping. So far the doctors I've seen don't know why this is happening. I'm trying to get a referral to Mayo. Have any of you experienced something similar?

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Replies to "I have had 9 ERCP's in the past year and a half due to a recurrent..."

Laura, thank you for sharing. I have my second EUS appointment scheduled at Virginia Mason in Seattle with Dr. Ross. My local doctor recommended him after an EUS procedure showed no issues. However, CT scans revealed a dilated bile duct in my pancreas. I am praying for your healing and hoping that you can receive treatment at the Mayo Clinic or a specialized hospital. If you don't mind, I'd like to stay in touch to see how you're doing and to share.

An Rx of Zofran (ondansetron is the generic) has really helped me when nausea hits. Maybe you can get that through your Gi doc(?)

in reply to @lauramazhari Wow, that is a lot of diagnostic testing! I'm sorry, but can also relate to the undesired weight loss, as I have lost 31 pounds in the past 2 years, and trying to gain it back is useless. I take phenergan for the nausea, as the zofran causes headaches. While my hepatologist attributes some of the problems to using opiates for chronic pain, the problem can also be caused by an autoimmune disorder. Has this been discussed with you? I have the same symptoms as you have described, thus the upcoming endoscopy in a month or so. I wish I had something better to say to you, but just know that you are not alone. Easier said than done...best of luck