← Return to What was your experience with Voriconazole?

Discussion

What was your experience with Voriconazole?

MAC & Bronchiectasis | Last Active: 5 hours ago | Replies (51)

Comment receiving replies
@blm1007blm1007

As I read all the above and all the many posts in different threads/topics regarding medications for the BE infections I am overwhelmed with thoughts. First I want to say to all of you....WOW....you all, as well as Sue, and others amaze me in terms of all you have had to persevre with in terms of the infections,medications and side affects. I'm not quite sure I will be as strong and determined as you all seem to be.
So far NJH and Tyler doctors didn't feel I needed to be on any drugs as yet due to mild CScan, sputum results and no typical signs of an exacerbation. My PFT is off the scale in the right direction at this point.
I may need all the encouragement you all are able to give should I have to make a medication decision for any of the infections one can develop with BE.
At a few months away from 82 years into life I am not sure I will want to deal with all that. Time will tell because I would imagine my day will arrive when I will hear......''time for treatment with medications for MAC, MAI etc. etc. Thanks for all the thoughts you have shared with me to date.
Barbara

Jump to this post


Replies to "As I read all the above and all the many posts in different threads/topics regarding medications..."

Barbara, I have BE too and my PFT is also high (99%) for my age.
Doesn’t that sound weird? Shouldn’t we have poor pulmonary function with BE. I’m confused.
Oh and I am being treated for MAC and Aspergillus too. No side effects after 5 months of treatment. Praises.