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Everolimus for multiple Neuroendocrine tumors

Neuroendocrine Tumors (NETs) | Last Active: Aug 15 8:38am | Replies (26)
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@lindabees

You’re very welcome!
Who do you see at Mayo? We see Dr Sonbal. In fact we have an appointment next Wednesday to go over scan results

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Replies to "You’re very welcome! Who do you see at Mayo? We see Dr Sonbal. In fact we..."
Turkey | @tomrennie | Aug 13 9:30pm

I know Dr. Sonbol myself. Started off with CAPTEM and everything shrunk. I completed 13 cycles of that. I have just been on capecitabine since. No growth. I was diagnosed with stage 4 pancreatic NET with metastasis to the liver in 8/22.

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phyllisden | @phyllisden | Aug 13 10:07pm

@lindabees, I'm no longer a patient at Mayo. That was almost 3 years ago (in Oct). I went down there from April-Oct 2021 for PRRT. I was a patient of Dr. Ahn but saw his nurse practitioner, Kelly. Dr. Rule was my radiation oncologist.

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