louisern,
I was also diagnosed at the low-mid for MDS. I was not denied at the COH, but rather encouraged. I had cancer just 2 years before and a TP53 mutation, along with another genetic mutation factoring in the first cancer. We can never know the outcome for anyone. I think your husband having you was a Godsend. A nurse who is resourceful and flexible. Wasted food aside, your footwork for housing and all you wrote is so helpful to so many. The food is the truth. Cancer gets those taste buds and twists them. Still I never ate a pea or a lima bean with or without chemo!
I am amazed so much at the way our research hospitals are so much the same in the procedure, but so varied in the pre and post op care. I need to check the area by the Mayo clinic as i believe it was built for the care you received. COH is building but is not there yet.
I was given 2 choices, to watch and wait and go into the Be a Match registry. I sat there looking at the results from my bone marrow biopsy, listening to the Doctor and my mind said NOW! I am so grateful.
So grateful to that your husband has rounded the corner. I know at 125 plus days past transplant I am as Lori said about 90% normal! I will never be 100% but every day we live healthier by exercising, eating well and living our daily lives.