I had pain and stiffness from the neck down for over a year, gagging attacks, some visual disturbance, fatigue, then got a rash across my face. I also had a dry cough at night and scalp tenderness.
I thought I had lupus when the rash appeared, but a doctor friend told me I was too old for lupus. I was 70 at the time. He focused on Polymyalgia Rheumatica and Giant Cell Arteritis, and told me what blood tests to ask my PCP to order. My inflammation markers (CRP and ESR) were off the charts and I was positive for Giant Cell Arteritis. It turns out the rash on my face was shingles, a mild case, as I'd had the Shingrex vaccine.
I hope you get some answers soon.