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Sensory Ganglionopathy help!!

Neuropathy | Last Active: Aug 15 5:06pm | Replies (24)

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@leslie04

Hello to my sensory ganglionopathy pals. I want to thank all the people in the group that responded to my last post last year. Just to give you an update. I am no longer on gabapentin. Which I found out after teetering down most the side effects were what I had going on. I am now on savella and it helps just a little bit. I'm also using a compound cream that my neurologist prescribed. Once the cream is on. It's relief for 10 minutes. My balance issues are still there and using a walker permanently. Also still using the wheelchair for long distances. Thank you all for giving me some hope. Knowing that I'm not alone with this disease. I am going to have more faith in my abilities to be able to handle this disease. Thank you all again.

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Replies to "Hello to my sensory ganglionopathy pals. I want to thank all the people in the group..."

Hi @leslie04, I combined your new post with your Sensory Ganglionopathy update to your previous discussion "Sensory Ganglionopathy help!!" - https://connect.mayoclinic.org/discussion/sensory-ganglionopathy-help/ so the members you met could see your update.

@langloism, @ratmum, and @sjt were all sharing their experiences on the condition and can now see your newest update.