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@loribmt

Hi Louise. You’ve been hiding in the background! 😅 I just realized you joined the forum almost a year and a half ago and this is your first time replying. So I wish you a belated welcome.
Congratulations to your husband on his stem cell transplant. Mayo-Rochester is my home away from home where I received my SCT 5 years ago the end of June. As caregiver, both of you have had a dramatic change in your lives the past year or so with the diagnosis of MDS and then, of course, the transplant relocation and all that excitement!

Thank you for sharing his story and your great tips on lodging, food, etc.. All of the information we share about our experiences can go on to help others more than we realize.
You’re homeward bound soon. Life slowly returns to a new rhythm. Your husband’s appetite will return and so will his stamina. It just takes time. As I said, I’m at the 5 year point and for several years now, I feel as though nothing ever happened. My life is 97% back to normal. I’m more aware of the possibility of infection or illnesses. While a SCT gives us a new immune system it will never be 100% as robust as our ‘factory installed model’ so there are precautions to be mindful about. But life feels more meaningful with that second chance!

A few years ago I started a discussion called;
Snapshots of hope: Life on the other side of transplant.
It’s been fun to see stories of members who have had any kind of transplant and how it has changed their lives. We like to get a ‘snapshot’ of something that wouldn’t have been possible if not for the transplant. When you get back to Hawaii it would be fun to see a photo of your husband enjoying a special moment post transplant!
Here’s the link:
https://connect.mayoclinic.org/discussion/snapshots-of-hope-life-on-the-other-side-of-transplant/
Which island do you call home?

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Replies to "Hi Louise. You’ve been hiding in the background! 😅 I just realized you joined the forum..."

Hi Lori, I replied earlier but think I forgot to "send".
we are from the big island of Hawaii, Kona side. Very homesick now that Dave is feeling better and we are needing to spend less time with medical needs. But super grateful for the great medical care here at Mayo. We are aware how important it is to stick it out for the 100 days as the medical care we have back home is pretty sketchy!
Will keep in mind to send a photo of Dave's new life after we return home.