We just came back from his appointment with a new neurologist.
At this practice they offer the caregiver, (God how I hate to think of that word applied to me! ) the services of a social worker who you may talk to ( without the patient present) about any problems at home caused by his disease, his temper, etc. and supposedly he or she would give you tips to deal with those things. I made an appointment with her, ( 2 months away, apparently she's very busy) if nothing else it'd be someone I can vent with who understands the situation, I hope. I wonder if you could talk to somebody like that at your husband's doctor's office?
I totally identify with you, I'm very concerned about myself because my calvary is just starting and already there are days I literally would like to just stay in bed and not wake up until all this has passed, however long is going to take.
We need to find a way to get a respite once in a while, or find somebody to talk to who is or has been in the same boat as us.