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Any pre-injection tips for Tymlos?
About to start Tymlos on Thursday. I know with Reclast a drink of water and 2 Tylenol before the infusion was helpful for absorption, side effects. Any similar pre injection tips from those who have been using Tymlos? Has anyone tried meclizine or another anti-vertigo drug to help with dizziness/nausea as body gets used to Tymlos?
Also - seeing here women talking about gaining weight and bloating on Tymlos - I haven't heard about this any where else. How bad is that? Being treated at a Boston Teaching Hospital and welcome this online community!
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@bboon55 little old lady here too- happened in a moment!
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1 Reaction@windyswindyshores @bboon55
I am so sorry you both have experienced this! Sharing like you have helps people like me, who might like to just ignore the situation because “I feel fine”, keep on the straight and narrow and accept treatment. Thank you!
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3 Reactions@babbsjoy
Just be aware that it is possible to start with a smaller dose and work your way up . I did this with no side effects .
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1 Reactionbabbsjoy, watch for dizziness after the injection. If you have a bp cuff it is interesting to watch the bp drop because it happens so quickly. Excellent choice, Tymlos. Keep us posted.
Tymlos is a great treatment. I will finish my two years in March 2026. In that time, I have gone from severe osteoporsis to osteopina. My doctor is amazed at my DEXA numbers and says this is now his preferred treatment plan.
OK...I'll be honest...first dose was uncomfortable but not severe and, like you, it was done in the doctors office and I waited about 30 minutes after the injection. The side effects went away in about 10 minutes. it never happened again. I was never given the option to take a lesser dose and am wondering, if by doing that, at the end of your two years, have you taken the full dose for 24 months of treatment. You cannot take it longer than 24 months, In my case, insurance has covered the prescription in full. They are covering a huge amount every month. If you were to stretch your treatment duration out, would insurance continue to cover it beyond 24 months?
I know a lot of people say to work your way up by clicks but I think that would be a decision for you and your doctor to make. Don't make it on your own just because it worked well for other people. We are all different. The smaller needles are what came with my prescription. If you pinch your skin and then inject, you can't feel it. My husband did them for a while until I felt comfortable doing it myself.
Really, it's not bad, just relax and go in with an "I CAN DO THIS" attitude and you will be fine.
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