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Aortic Aneurysms – Introduce yourself & meet others

Aortic Aneurysms | Last Active: Dec 11 7:12pm | Replies (581)

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@awrupska

Hello, my name is Andy and I am a 53 y/o white male who just recently (this week) found out that I have a 4.7 cm Ascending Aortic Aneurysm. I am 6'2, 225 lbs and have been active all my life. I happened to find this on a routine CT screening for a Cardiac Calcium Score. The only reason why I even asked for the test to be done was for peace of mind. Well, my Calcium score was only 51 but what they did find was the aneurysm (Totally shocked). I have battled my entire life with Anxiety (Probably because I have been a nurse for more than 30 years in ER and my mind goes to the worst situations possible). Now this- How does one cope? Is this a death sentence? My Cardio Vascular Surgeon wants to watch it for 6 months and re-do the CTA to see if it has gotten worse. He stated surgery (Open Heart) is the only way to correct it and that usually is not needed until at least 5.5 or 6 cm, when the risk of not doing the corrective surgery outweighs the risk of surgery. I am sorry I am rambling, but my mind just spins in all of this yuck. Has anyone else been here? Are there people who have lived with this for a while? Can we live a normal life with just some moderation changes? Looking for positives through all of this.

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Replies to "Hello, my name is Andy and I am a 53 y/o white male who just recently..."

You're not alone. I find it so helpful to know that others are in the same boat as I am. This is scary but I think of it as a wake-up call or a jolt to remind me to pay attention to how I spend my time and live my life to the fullest. We're all going to go someday, but this time can be all the sweeter for this new perspective.

Andy,
My situation is pretty similar to yours. I am 5 years older, a little taller, and about 20 pounds lighter than you and have been a competitive marathoner and rower for a good portion of my adult life. Also found via a precautionary CT scan for a calcium score. I'm at 5.0. Found out less than 6 months ago and am heading back for 6 month follow-up scan in a little over a month. It's been an adjustment in a number of ways and has taken me some time, so you should expect the mental sorting out process to take you some time as well (I've read studies that depression amongst people who were newly-diagnosed is not uncommon). For me, exercise has been a stress reliever and learning to dial back on the intensity of exercise while still exercising has been an adjustment. It's also been challenging because doctors tend not to give you objective guidelines for these things (I use a heart monitor to generally keep in a "zone 2" level of intensity and don't do any heavy lifting). My doc told me at 5.0 I am in a "gray" zone where most insurance will cover surgery, but I have some discretion about whether to wait until it hits 5.5 (which will likely be sometime in the next five years based on an average annual progression of 0.1) or elect to have it done now. Initially, I was leaning toward a wait and see approach, but more recently have been thinking about just having the procedure done later this year since I would be a decent candidate for successful surgery and for peace of mind. Good luck to you. The stories of others who have gone through this does help.