Sorry! I just get really frustrated sometimes. When I was first diagnosed with this small fiber neuropathy dysautonomia along with severe axonal sensorimotor polyneuropathy the neurologist was like it’s no big deal. As an RN I knew I was being lied too. You have nerves throughout your body heart kidneys and so forth.
Then the neuropathy moved into my heart it beats too slow or too fast my BP either high or low. It’s called CAN- cardiac autonomic neuropathy they give you 8-10 years once it’s in your heart. 4 of the years have all ready gone by. I know that only God knows when you are going to die. Getting the sentence from the electrophsiologist and cardiologist.. I looked at all of them and said so you told me you can’t die from neuropathy but you’re giving me a 10 year sentence. Dr Oaklander researched this since before 2015 no medications or anything just about neuropathy it feels like some headway should have been made. Since 1966 Germany has used IV alpha lipoic acid but the pills don’t work as well. Very little if any research into this in the United States so they will not use it. It’s frustrating knowing other countries have treatments but not the US. I feel like they don’t consider it all that important.
They don’t talk about it moving into your organs because they have nerves too. They tell you after the fact.