Hey Ken, sorry for your situation. I have friends (not on the forum) that have Medicare Advantage and have had the same struggle. I have traditional Medicare and have had to receive two PET-PSMA scans and have had near zero out of pocket costs. I had piss poor private insurance prior to receiving Medicare and they wouldn’t pay for anything but a standard 12 core random biopsy which, according to my oncologist was a recipe for disaster. My point in sharing this as I understand your situation.

You may want to consider or at least investigate switching to traditional Medicare either after you get treated or before. Here’s a link on how to do that: https://www.kff.org/faqs/medicare-open-enrollment-faqs/how-can-i-switch-from-medicare-advantage-to-traditional-medicare-is-there-a-form-i-need-to-fill-out/

Good luck on your journey. Don’t be afraid to be your own advocate, even if that means calling so frequently that they get tired of hearing from you.

And remember, we’re here for you.

- Bob