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I feel like start running and not look back!
Caregivers: Dementia | Last Active: Dec 24, 2024 | Replies (137)Comment receiving replies
Your experience really resonates with me. My husband also has never been an easy person to live with. He's always been a glass half-empty kind of guy, rarely finding much to feel good or happy about, even though we have been fortunate in our lives to have a beautiful family (who live far away now), successful careers and a comfortable retirement. Now that he, really we, are facing a major health challenge, his outlook on life has gotten even more negative. There are ample opportunities where we live to get involved in small groups of people and activities, but he won't try. Like you, I think I should have gotten a divorce years ago, but now I won't consider leaving him because he really doesn't have anyone else to care for him, or even hang out with him, due to his personality. He's just not any fun to be around! I find myself getting more and more depressed and isolated as a result.
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We just came back from his appointment with a new neurologist.
At this practice they offer the caregiver, (God how I hate to think of that word applied to me! ) the services of a social worker who you may talk to ( without the patient present) about any problems at home caused by his disease, his temper, etc. and supposedly he or she would give you tips to deal with those things. I made an appointment with her, ( 2 months away, apparently she's very busy) if nothing else it'd be someone I can vent with who understands the situation, I hope. I wonder if you could talk to somebody like that at your husband's doctor's office?
I totally identify with you, I'm very concerned about myself because my calvary is just starting and already there are days I literally would like to just stay in bed and not wake up until all this has passed, however long is going to take.
We need to find a way to get a respite once in a while, or find somebody to talk to who is or has been in the same boat as us.