← Return to Winsantor latest info.

Discussion

Winsantor latest info.

Neuropathy | Last Active: Aug 17 4:27pm | Replies (15)

Comment receiving replies
@bb0753

The reason research targets diabetes is bc as a group they have known cause and we know symptoms will not just spontaneously disappear and they have to be able to convince FDA that the treatment caused the improvement. With idiopathic since don't know cause the regulators would reply can't say it didn't improve for some other reason. This doesnt mean the drug would not also help those with other causes including idiopathic. They have also have done some testing on chemo induced neuropathy with improvement.

Jump to this post


Replies to "The reason research targets diabetes is bc as a group they have known cause and we..."

Mine is autoimmune it’s not going to up and disappear. Had it since 2002. Since, you have nerves in your organs mine has moved into my heart, bladder and kidneys. Diagnosed with cardiac autonomic neuropathy CAN once it moves into the heart cardiologist and electrophsiologist give you 8-10 years to live. 4 of those years gone. You also have to understand my frustration at this disease. People don’t think about nerves being in your organs and they don’t realize you can die from this. My heart beats too fast or too slow. My blood pressure gets high then it bottoms out and I loose consciousness. You try googling autoimmune severe axonal peripheral neuropathy or small fiber neuropathy dysautonomia all you find is diabetic information. It is literally like we are left behind and they aka researchers don’t care. I love it when doctors say you can’t die from this until it moves into your organs then it’s a whole different story.
After awhile you get tired of people trying to justify only the diabetics matter. I have a family just like they do. My kids will be without a mother. At my four years I was told the arrhythmias have gotten a lot worse. I can’t have a pacemaker because you have to have the nervous system to pace.
This Winsantor everyone is excited about is a cream. You can’t put a cream on your organs.
It really hurts when it’s moved into your ribs..