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Post-COVID Recovery & COVID-19 | Last Active: Aug 18 6:48pm | Replies (34)
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Hey, I also have worsened pots after covid and LC. I live in Raleigh and am also in the Duke system. Maybe we can connect?
Replies to "Hey, I also have worsened pots after covid and LC. I live in Raleigh and am..."
It’s nice to know there’s someone else out there with POTS that got worse after COVID…though I’m sorry that had to happen.
That happened to me too, and I wondered if I was imagining it or had fallen behind on the self-care measures I was doing. My care team diagnosed me with long COVID as well. At first they said, “These increases in symptoms are usually transient in nature,” until of course they weren’t. Wishing you all the best.
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Sorry, but I don’t live in North Carolina. 😕 I’m in Indiana, but have been an out-of-state patient at Duke since 2014. I have a rare primary immune deficiency and Duke is one of only a handful of medical places in the nation that is knowledgeable about it. When needed they direct my local doctors and monitor my health. I have 2 immunologists at Duke. They are really crazy busy there!