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Now Receiving GammaGard Bi-Weekly Infusions
Autoimmune Diseases | Last Active: Aug 22, 2024 | Replies (27)Comment receiving replies
I have been receiving IVIG for the last 13 years for Common Variable Immune Deficiency. My infusions are every three weeks. I am 70.
I have experienced many side effects, including chills fever, body aches and extreme fatigue.
I premedicate with Zyrtec and take tylenol as well, which has really helped with the side effects. Being will hydrated is a must.
My infusion nurses are amazing! We have finally settled on starting the infusion slow and gradually increase. It takes 3 to 4 hours for each infusion.
I also take a nap when I get home on infusion days. I don't schedule anything else for infusion day. I call it my lost day! I feel back to normal by the next day.
While it is a life long treatment,
I am grateful, as it keeps me out of the hospital and I experience fewer illnesses that require antibiotics.
Be kind to yourself, enjoy the little things and avoid the "joy suckers" !
All the best to you- take care!
Also, a good resource is MyIG Source. Check them out--they are amazing!
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In reply to @meo Thank you. Yes MyIG Source is a green support as is the IDF. I learned a lot about being immune compromised at the recent IDF conference, and they are another great source of information. If you are interested, they have recently posted all of the conference sessions on the IDF website. Very good information. I’m glad you are having a good experience with the IVIG. As I’ve said, I’m only going to try the treatment for a few months. I’ve been fortunate not to have had any serious infections, and while I’m told that IVIG is a great thing, it doesn’t come without challenges. Believe me, I avoid all kinds of people and situations that are otherwise unpleasant. Thank you for your insight