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Looking for Anal Cancer Support

Colorectal Cancer | Last Active: Sep 9, 2024 | Replies (42)

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@hopenjoy2024

Thank you for the kind words. Everyone has said the same thing about the pain, but in my case, I have been waiting since the beginning of July for treatment and the pain is getting worse as I sit in my own excrement in unbearable pain and if I move to even go to the loo my heart rate jumps to 118. One more week until I go to get sigmoidoscopy and then wait and wait and wait for histology. Oddly enough, the original al histology indicated non-hpv squamous cells, which adds to the mystery.

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Replies to "Thank you for the kind words. Everyone has said the same thing about the pain, but..."

Don't let them jerk you around with treatment. I had did 2 hospitals and was told either have this surgery which means I end up with a bag or go die. Said forget you and went to Mayos I am treated as a difficult patient but I don't care as I am the one living with this disease not you. So I call myself and get the appt's I need do NOT take we will call you back. Be firm and say 10 weeks I will probably be dead so lets get this ball rolling, ASnd it is amazing if you are kind but insistent they do find appt time. And get to Mayo MD Anderson or Soan Kettenring Any test you have within an hour you have the test results on your phone. Non of this weeks later a report Don't let the local hospitals jerk you around call Mayo's and make an appt. All the local hospital want is your money so that is why they drag you along. Put your foot down it's your body and you need to get the best care possible which at the local ban aid hospitals it is not happening