Hello there
Yes I know primary is rare, which is what I have ..
It really does take a lot of strength to organize yourself to "talk" to doctors .. although my GP is the easiest one ever, so I am grateful for that.
Another complication has arisen which is also rare .. I have a fistula behind my left eye .. it is a matter of opposite blood vessels joining some how .. vein to artery .. and the pounding pressure that is happening .. I have more testing to go through to find out what can be done so that is stressful right now.
I am on Orencia infusions for the RA .. I would like to find others on that medication to see if they find it is really helping .. yes, I know Google can drive you crazy but sometimes there is a grain of information that is valid ? I have been handling most of these for some time so I'm used to what I should pay attention to and what not to. Thanks for the reply !