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Multiple Auto-immune Diseases ?

Autoimmune Diseases | Last Active: Aug 20 6:42pm | Replies (31)

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@windyshores

@annella I have lupus and high antibodies for scleroderma. One of my grown kids has type 1 diabetes, celiac, seizure disorder, and lupus with joint pain, alopecia, Raynaud's etc. She has had most of these since childhood or teens. We both get really sick in the sun. We have been told that one autoimmune disorder makes you more likely to get another.

Some of the things you list, I share, but don't consider them autoimmune. I have afib, osteoarthritis, degenerative disc disease, tinnitus. A bunch of other things.. At a certain age, a lot of us have a long list, unfortunately. If you are young like my kid, that is even worse. If you have been told these are autoimmune, I would be interested...

Addison's, RA are autoimmune of course, and hard to deal with. Raynaud's can be part of an autoimmune disorder, or not, I have been told.

Sorry you are suffering. I think it helps to ask doctors to differentiate health issues you suffer with that aren't autoimmune and those that are. For treatment purposes. Of course it can be hard to tell since autoimmune disorders mimic so many other problems. Do you have a good rheumatologist

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Replies to "@annella I have lupus and high antibodies for scleroderma. One of my grown kids has type..."

Hello and thank you !
I should have been more clear about what was AI and what was just happening to me, a bit of brain fog was going on when I was typing I think .
I have a rheumatologist , endocrinologist .. who I think has dropped the ball sadly .. he is a nice man, but I question lack of knowledge or experience handling primary Addison's. I have a very good GP which helps a lot.
I'm just tired of handling it all .. my husband has been wonderful through it though, so that really helps.

Yes I think she is very compassionate although the last visit was not quite as good as my others .. doctors can have bad days too ? LOL
Right now I have attention on the two major things .. Addison's and the fistula behind my left eye .. waiting for more tests to find out what the neurosurgeon suggests .. I think I could live with it frankly .. surgery could make everything worse for me (if I survived it , LOL)
Thank you for your insight .. I'm 67.. so I'd rather enjoy what is left of my time here on earth rather than contend with the fall out of a bad choice.