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Multiple Auto-immune Diseases ?

Autoimmune Diseases | Last Active: Aug 20 6:42pm | Replies (31)

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@frances007

in reply to @annelia Wow, you have a lot going on, and I am sorry. Addison's disease is rare and can be quite severe according to what I have been told. I am sure you know there are 2 types, one more serious than the other. Have you had testing for the same? Do you have adrenal insufficiency? It sounds like you might need some additional tests to rule this out, and I wonder if you have discussed this with your doctor. Like you , I also have a variety of autoimmune disorders, and tend to just try to"accept" them for what they are, considering that there is no real treatment for them, so I am told. I am very sorry you are suffering. I would encourage you to talk to your clinician, which I know is not always easy. However this site certainly has a lot of good information. What I cannot stress enough is to stay off of "Google," as you will wind up in a rabbit hole of misinformation unless you go to sites that have "real" information such as NORD, NIH etc.
Best of luck.

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Replies to "in reply to @annelia Wow, you have a lot going on, and I am sorry. Addison's..."

Hello there
Yes I know primary is rare, which is what I have ..
It really does take a lot of strength to organize yourself to "talk" to doctors .. although my GP is the easiest one ever, so I am grateful for that.
Another complication has arisen which is also rare .. I have a fistula behind my left eye .. it is a matter of opposite blood vessels joining some how .. vein to artery .. and the pounding pressure that is happening .. I have more testing to go through to find out what can be done so that is stressful right now.
I am on Orencia infusions for the RA .. I would like to find others on that medication to see if they find it is really helping .. yes, I know Google can drive you crazy but sometimes there is a grain of information that is valid ? I have been handling most of these for some time so I'm used to what I should pay attention to and what not to. Thanks for the reply !