Hi G,

I was diagnosed with PMR in 2016 after knee replacement and possible GCA. Was on 60 mg prednisone for weeks, then tapered to 4mg over many months. Had a few intermittent flares too. Had Covid in 2022, vaccine and 2 sessions of Reclast because of possible osteoporosis. Feb. 2023 had increasing finger, hand and wrist pains. Went back up on prednisone, rheumatologist quit for cash only, new rheumatologist suggests Kevzara. After the second Reclast my head itched so bad, hair came in curly and like straw and the hand/fingers pain started. Endocrinologist is checking me for hyperparathyroidism but not confident in him. The goal is to find relief from pain and
morning stiffness from Kevzara and taper down/off prednisone. Markers are negative except sed rate is elevated during a flare. As you can see, I’m extremely hesitant to start another new drug. Methotrexate for 5 months did help the hand pain but headaches were intolerable. Had Covid again 3 months ago followed with one of the worse flares ever.
This is my history…Hope it gives insight to someone. It will help me to communicate with others regarding this disease.