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Moyamoya treatment

Brain & Nervous System | Last Active: Apr 29 4:18pm | Replies (17)
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Profile picture for arianajpalomo @arianajpalomo

I was recently diagnosed with Moya Moya in February of 2024. I’ve been diagnosed with type 1 diabetes for that last 20 years. I am wondering if there is anyone else who is experiencing managing both diseases and if there’s any research that discusses any potential co-morbidity? I also started using an omnipod and managing my diabetes better. I recently suffered another stroke due to Moya Moya and will need to have two brain surgeries so I want to know how my diabetes may impact the recovery process as well.

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Replies to "I was recently diagnosed with Moya Moya in February of 2024. I’ve been diagnosed with type..."
valeriedawn | @valeriedawn | Apr 24 9:44am

@arianajpalomo

Hi Ariana,
I'm not sure if you are still on this site? I was diagnosed with moyamoya in 1998 and had Pial Synangiosis surgery that really helped! Please see my post for more details.

I do not have diabetes, but I did learn that for some people with Primary moyamoya disease there can also be a narrowing of the blood vessels leading to the kidneys, in addition to the narrowing that occurs in the Carotid artery in the brain. So, I wonder if there is a chance that this is true for you? It might be worth it to bring this up to your doctor. The NIH recommends that everyone with Moyamoya also see a nephrologist to evaluate this further, since there is a higher prevalence of this problem for people with Moyamoya disease.

Best wishes,
Valerie.

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