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← Return to Hair Loss from Prednisone
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I’ve been on prednisone since January 2024. Started at 15mg and now am at 5 mg.
I’m also on Plaquenil 200mg 2x day. And have also been taking Actonel for osteoporosis since March.
My hair loss is significant. I’ve never had beautiful hair but this is so upsetting. Aside from the loss , my hair has become brittle and frizzy. At times I look like Albert Einstein! Not sure if my hair will ever recover.
Thankfully I discovered Toppik ( powder) which I sprinkle on the bald spots each morning. The powder fills in the spots and stays on all day. At least it makes me feel a little better going out in public.
But must says it’s just so upsetting to have these medical issues in the first place. Then to be on so many medications for PMR and OP and have hair loss and loss of self esteem, just adds insult to injury.
Thanks for bringing up the topic. I thought I was the only one with this issue because my rheumatologist didn’t think hair loss was a major issue with these meds.
Replies to "I’ve been on prednisone since January 2024. Started at 15mg and now am at 5 mg...."
@szf10
I, too have had significant hair shedding since taking prednisone. I have GCA and started on 60 mg. The shedding didn't start until 8 months in and hasn’t let up even tbough I am down to 4 mg. My rheumatologist wasn't sure of the connection and suggested checking ferritin levels, B12 and thyroid function. I feel exactly as you do - it's hard enough dealing with illness nevermind hair loss. Hopefully it is telogen effluvium which is the kind that does grow back once off prednisone.
I use Clairol cover up powder but will look into Toppik. This has been a big hit to the ego. Good luck to us all!
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I have had significant hair loss related to prednisone use. Your description of looking like Einstein is spot on for me too. I gave in last fall and bought a wig. It has made me feel better, plus so many compliments from friends. I do hope that once I get off prednisone, my hair will grow back. Even though the wig looks so lovely, I appreciate my own hair.