← Return to Slowing the progression of PN

Discussion

Slowing the progression of PN

Neuropathy | Last Active: Aug 14 8:34am | Replies (7)

Comment receiving replies
@johnbishop

Welcome @aussi, I'm 81 and not as active as I should be but I do make sure I get 30 to 45 minutes a day on my exercise bike along with a few other exercises during the day. Slowing the progression is probably the one biggest question we all have with neuropathy. Back in 2016 I had the opportunity to listen to an 80+ year old neurologist from the University of Minnesota talk at the now gone by the wayside Minnesota Neuropathy Association. One thing he said that stuck with me was that if you live long enough you will get neuropathy as nerve cells die like any other cells in the body. I have idiopathic small fiber PN and shared my neuropathy journey in another discussion here - https://connect.mayoclinic.org/comment/310341/.

You might find it helpful to scan through the other related discussions on slowing neuropathy progression. Here's a link that shows the discussions and comments - https://connect.mayoclinic.org/search/discussions/?search=slowing%20neuropathy%20progression.

The Foundation for Peripheral Neuropathy has a lot of great webinars on their YouTube channel that you might find helpful - https://www.youtube.com/@foundationforperipheralneu4122/search?query=progression.

I think being active and staying active is one of the best things you can do to help yourself. One of the things I think that is often overlooked by men (including me!) is keeping the skin on the legs and feet moisturized so that it doesn't get really dry. The peripheral nerves are next to the skin so it just seems logical for me. I use a brand called LifeFlo Magnesium Lotion at night and it does make my legs feel better. Do you use any skin lotions?

Jump to this post


Replies to "Welcome @aussi, I'm 81 and not as active as I should be but I do make..."

John, has anyone else posted about a lotion or cream that helps with the dryness? I agree that my symptoms are better at night if I've moisturized my legs. I'm trying to find an effective moisturizer that is not greasy and I can used during the day as well as at night.

Thank you John [@johnbishop]
I have used the Foundation references but do not use a moisturiser as have not had the need as yet. Will keep that in mind though as we progress