← Return to Stage 3a, Group 9, just discovered. Dr. gave options but have question
DiscussionStage 3a, Group 9, just discovered. Dr. gave options but have question
Prostate Cancer | Last Active: Aug 30 10:08am | Replies (42)Comment receiving replies
Replies to "I am two and 1/2 weeks into this. I am researching, carefully. Just got the Walsh..."
Lol
Maybe one by Scholz too.
The more the better
TAKE YOUR TIME AND DO NOT FEEL PRESSURED TO MAKE A DECISION ON YOUR TREATMENT. Also remember that other members on this forum are not experts on prostate cancer and may have biases that do not serve your best interest.
I believe that “Groundhogy” means well however I strongly disagree with using the website and graph to influence your treatment plan. I used it the first time around to determine which treatment to choose. I feel that it led me in the wrong direction and as a result I’m dealing with high risk, aggressive, Stage 3 locally metastatic PCa as a result.
The chart and website ignore genomics as a consideration which in my opinion is not in the best interests of men with PCa. Aggressive cancer can kill you. Prostate cancer is a complex disease and treatment is never a “one size fits all” solution.
Here’s my non-medical advice.
1.) Read the book. Make notes of questions to ask.
2.) Seek care at a center of excellence even if you have to travel. https://www.cancer.gov/research/infrastructure/cancer-centers/find
3.) MAKE CERTAIN THAT YOUR CASE HAS BEEN REVIEWED BY A TUMOR BOARD where doctors with different disciplines have weighed in regarding what is the best treatment modality for YOUR case.
4.) Ask what “Plan B” is if Plan A fails. Make certain that you’re comfortable with that answer.
5.) Don’t hesitate to get a second opinion.
6.) Consider getting genomic testing and a Decipher score. Understand how aggressive of cancer you’re dealing with.
Good luck and keep us informed.