@nomikins - Hi! The Imiquimod (Aldara) has had no burning impact for me, which is surprising but I guess not unique. It did make me wonder if it is/was working. I will try to see what I can see on visual inspection (it is difficult to do this, in my experience), but I sure hope it is working! I have the follow-up appt w/m oncologist in early Sept, at which point that'll be 2 months of Imiquimod application.
Also, appreciate your mentioning your experience with EMPD. I think I will mention this to my gyne-oncologist. May I ask how it was diagnosed? I'm guessing it was a biopsy with the lab assessing the cellular structure and type/s.
Geez! As far as the Aldara then, if your gyne-oncol recommends it, absolutely go for it, and I hope it will be effective for you. Is there anything else you have to be concerned with when being diagnosed w/EMPD?
Best to you, and keep posting, as you can.
In terms of the dx of EMPD, yes it was by punch biopsy. And then many more mapping biopsies all around the vulva to find how widespread. The biggest concern is that Pagets can go from non invasive to invasive. But they say it’s very slow moving. Even so, we really don’t know how long I’ve had it because I was being treated for LS all this time, which was never confirmed by biopsy. Ugh. Wish I had had it biopsied from the get go.