I have had CRPS dx after four years of burning pain in rt foot due to a poorly done surgery. That was 16 years ago. It has spread to left foot and up my leg to my butt as well as up my right calf. I recently was dx with lymphedema and discovered that CRPS and lymphedema together is not unusual. I am waiting for lymphedema pumps for both legs. I will see my vascular surgeon this coming week to confirm I have lymphedema in my right arm and possibly left. This combination is unusually painful in different ways. I have put on 20 lbs but my clothing size has not changed! The heaviness in my legs makes it hard to move.
I have had sympathetic nerve blocks that helped my left leg and butt. This stuff is nasty as it affects my heart as well.
Being allergic to every pain med I have been given, I am on Low Dose Naltrexone. It took 7 months before I could reach the desirable dose due to side effects in going up to the next dose too quickly caused a variety of physical reactions. NP told me it might have to be raised as I do not have the pain relief expected. I told her I read it could take 9-12 months before full effect can be felt.