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Now Receiving GammaGard Bi-Weekly Infusions

Autoimmune Diseases | Last Active: Aug 22 7:22pm | Replies (27)
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@twinkie23

Thank you Kathryn for the info about the Facebook groups. I have been having IVIG infusions for the past two months. I get normal premeds and also cyproheptadine before, migraine meds after. Yes, the headaches are nothing like I’ve ever experienced; blinding, ice-pick pain that last for days. The only thing that brings me back is the results I have experienced. I have not felt this “normal” in years!

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Replies to "Thank you Kathryn for the info about the Facebook groups. I have been having IVIG infusions..."
Kathryn M. Carroll | @kathrynmc | Aug 10 6:17pm

What is your rate of infusion? Often people will experience side effects such as severe headaches if their infusion rate is too high. It is not the same for everyone, it’s what your body can tolerate. The down side to lower rate is that it takes longer, but worth the extra time to not have to deal with the side effects that may last for a few days after your infusion.

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