← Return to My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

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@katgob

caregiverx
I hope you called scheduling. If the orders are in, then when you call scheduling, the nurses need to follow-up with the doctor's office. Plus, at Mayo, they have a transplant team. Do not give up hope. Lori who got her BMB at Mayo is a mentor in connects. Suggestions will come from her and others. I remember a flurry of activity during my testing then suddenly hearing less than a week before my transplant that it was ago!!! Another truth for me is I only met with the transplant nurses at and beyond test point, never the doctor after the transplant was confirmed. Something else I did not know, was on Floor 6 where transplants patients have their rooms at COH, my hematology doctor was never part of the rotating doctor staff on floor 6. Daily we got visits from the Dr, RN, and staff who checked on us every morning. It never occurred to me my Dr would not pop his head in to check on me. Now I know this was a question i never thought to ask.

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Replies to "caregiverx I hope you called scheduling. If the orders are in, then when you call scheduling,..."

Hi @katgob, at one of the appointments before my transplant, my doctor explained to me that once the actual transplant process begins that I would not be seeing him very much. The care is transferred to the transplant team on 9th floor of the hospital and out of the clinic. However…he wanted me to know that just because I wouldn’t be seeing him in the clinic, that he would be behind the scenes getting daily updates from the hospital and making the daily decisions for my treatment. He actually did pop in to see me a couple times when he was on the floor for rotating ‘on-call’ weekends…and the night before the infusion.
After about 1.5 months of daily visits to the transplant clinic for bloodwork, infusions and such I was then released from the transplant floor and back into my doctor’s care in the clinic again. So I think every clinic has their own protocol.
How are you doing? How is the flea situation coming along?