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Prednisone to Kevzara back to Prednisone. ( Hope not )

Polymyalgia Rheumatica (PMR) | Last Active: Aug 14 7:29pm | Replies (49)
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@tadatada1

This support group has been great.
Prednisone is a miracle drug 4 days on it and every bit of pain is gone. As I previously wrote now I am on zero prednisone and kevzara. The weakness in my legs began a year ago when I was still on my 10 mg magic dose that caused my PMR pain to disappear and I had no inflammation on my blood test As I tried to get up from the floor I noticed it was harder and harder and I needed to hold on It was my rheumatologist who stated I might have prednisone myalgia
So now I have no idea what to do. I am giving it more time raising my legs. ( because now I have swollen ankles and painful knees ) and what I describe as gurgling in my thighs in the middle of the night Should I go to a cardiologist or a orthopedist or just pray that time will cure all wounds.
I listed to everyone on this thread and every time the go to a specialist for their specific painful body part the specialist finds something wrong. Opening up a Pandora’s box PS. Walking on flat surface for miles is no problem. So I don’t say know when asked to join most activities

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Replies to "This support group has been great. Prednisone is a miracle drug 4 days on it and..."
tuckerp | @tuckerp | Aug 9 5:57pm

I wish I could help with what your going thru. But I dont have any answers for you or heard of anyone with Corticosteroid myalgia. I know my wife from being on steroids for the last 4 years gets terrible swelling in her ankles. It does help to elevate. Her knees also pop and sound terrible. But I attribute most of hers to lack of movement. So I cant be very supportive. A cortisone shot helped my shoulder when I was trying to make diagnosis. but Ortho Dr said you can only do a couple of those before you damage the joint. I suspect like the last two mentioned an emergency call. Medicare is good about picking up those expenses. Here is what a google search revealed about myalgia./
"Additionally, physical therapy in the form of resistance and aerobic exercise has been shown in some studies to prevent and treat steroid-induced myopathy.[2][3] As such, a screening program for steroid-induced myopathy should be implemented in the appropriate patient population, and patients should be prescribed physical therapy as a preventive and treatment modality for this condition.[4]"?
https://www.ncbi.nlm.nih.gov/books/NBK557731/

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