I’m sorry you are going through this… it’s scary for sure. So nice to have this connection with others!
I was diagnosed with right breast DCIS in Feb. No lymph node involvement . A little over 3cm and grade3. I had a lumpectomy but did not get clear margins and they found a little invasive ( which they said was common) so they scheduled another lumpectomy. That one did not get a clear margin on one side! I figured 3rd time’s the charm! Nope. Third lumpectomy, still one unclear margin and also some lobular ( LCIS). I also developed a Seroma and have to pack my incision with gauze daily. I decided this is enough…as I have dense breast tissue and I had a questionable area on my left side a while back as well. It biopsied ok but made me nervous. So now I’m scheduled for a bilateral mastectomy in October. I’ve decided to go flat as I’m 55 and the idea is a little “ freeing” to me. I’ve know several women with implant issues and I’ve already had 3 surgeries, so that’s not for me. Others I know who’ve had DCIS said “ oh it will be one and done!” in the beginning of this process…what I’ve learned is not to expect anything but hope for the best, since you just don’t know. Every step of the way is different. I’m hoping this decision will give me peace of mind in the future and though it will be an emotional transition, I feel sure it’s the right one for me.