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Kaposi’s Sarcoma: Just want to talk

Sarcoma | Last Active: 6 days ago | Replies (24)
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@colleenyoung

Welcome @sagan7. I moved your discussion about living with Kaposi’s Sarcoma to the Sarcoma support group here: https://connect.mayoclinic.org/group/sarcoma/

I'm also tagging fellow Kaposi members like @bigredd566 @zaptor88 @kaposi @jrs2024 @ggarca @leroy23, who may wish to share their experiences and answer some of your questions.

@sagan7. can you help get the conversation started? What challenges are you facing living with Karposi?

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Replies to "Welcome @sagan7. I moved your discussion about living with Kaposi’s Sarcoma to the Sarcoma support group..."
adi21 | @adi21 | Jun 1 11:49pm

Hello
I am 58 years old and 2 years ago I was diagnosed with classic Kaposi's Sarcoma HIV negative
. Coincidentally or not, the disease appeared in me after the third dose of the Pfizer vaccine for covid 19. What country are you from and what treatment have you used so far?
What stage is the disease?
I went to Italy to see Dr. Lucia Brambila, the doctor who classified the disease according to the lesions.
I have stage 2b out of 4 stages. I only have lesions on my lower limbs. I had radiotherapy in 2023 and 2024.
The doctor forbade me from having radiotherapy and recommended compression stockings and Imunmens, a medicine that contains vitamin. Give me an email address so we can talk more easily.

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