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@loribmt

Welcome to Connect, @rogweig. Thank you for sharing your wife’s story of CAR-T therapy for her Acute Lymphoblastic Leukemia. It’s wonderful to hear she’s been doing so well.
I haven’t seen any specific discussions within the group of CAR-T recipients regarding their diet changes. But this has potential for a great discussion so hopefully more members will pop into the conversation with you.

What encouraged you both to change diets to abruptly?

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Replies to "Welcome to Connect, @rogweig. Thank you for sharing your wife’s story of CAR-T therapy for her..."

I wanted my wife to have the best possible chance for her Car T Cell therapy to be a long term success. Diet is something we have control over. We've gone to a low carb, low sugar, no seed oil route; basically following a mostly carnivore approach. While there apparently aren't any studies concerning post leukemia diet and nutrition, it seems to me it can't be beneficial if survivors go back to eating a crappy diet full of sugar, oils and ultra processed foods. The only recommendations I've found is a low fat, whole foods approach to eating that eschews red meat. But I've seen no evidence to back up this recommendation. I do know that since changing our diets, both of us have lost weight and our overall health has greatly approved. Are we doing the right thing? I don't know. It seems like we are. I'd love to hear what other Car T cell recipients are doing, what changes they have made, what challenges they're facing.