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DiscussionAre people making dietary changes after CAR T cell therapy ?
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Aug 12 3:23pm | Replies (5)Comment receiving replies
Replies to "Welcome to Connect, @rogweig. Thank you for sharing your wife’s story of CAR-T therapy for her..."
I wanted my wife to have the best possible chance for her Car T Cell therapy to be a long term success. Diet is something we have control over. We've gone to a low carb, low sugar, no seed oil route; basically following a mostly carnivore approach. While there apparently aren't any studies concerning post leukemia diet and nutrition, it seems to me it can't be beneficial if survivors go back to eating a crappy diet full of sugar, oils and ultra processed foods. The only recommendations I've found is a low fat, whole foods approach to eating that eschews red meat. But I've seen no evidence to back up this recommendation. I do know that since changing our diets, both of us have lost weight and our overall health has greatly approved. Are we doing the right thing? I don't know. It seems like we are. I'd love to hear what other Car T cell recipients are doing, what changes they have made, what challenges they're facing.