← Return to Squamous Cell Vulvar Cancer: Who out there has this cancer?

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@andwho

One year ago I was diagnosed with vulvar cancer. It started with LS which I had for a very long time & didn’t know it. I went thru chemo & 32 radiation treatments. A life changer.
Had my 5 month pet mri all was good. Due for another and hoping all is good again. This is my life now. My question is will my vulvar ever be the same again? It has healed but skin is just not the same & still sensitive . It seems I may have late side effects also. Is this the new me?

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Replies to "One year ago I was diagnosed with vulvar cancer. It started with LS which I had..."

I had a vulvar cancer and had surgery on late2022 and started 2023 with chemo and radiation. I can tell u that my skin is still very sensitive. Did u get some cream from your oncologist? Mine is a combination of Lidocaine & Silvadene cream. I don't use it all the time but it does help. Especially at my incision site. The toughest part for me is when I walk or sit, I feel it. Hard to forget you have\had cancer when you are reminded everytime you move. What stage was your cancer? I also had several lymph nodes removed. ♥️ Bobbi

@andwho I was not diagnosed with vulvar cancer however you will see within this Discussion that many of your questions will be answered. @bobette1 responded to your question about how she feels almost two years post surgery and how she manages the discomfort.

I will share the following about myself. I was diagnosed with endometrial cancer in 2019 and then a recurrence in late 2021. At the initial diagnosis the cancer was stage 1a which meant the radical hysterectomy with fallopian tubes, ovaries, and cervix all removed was considered by my surgeon (and pathology reports) to have removed all the cancer. No other treatment recommended in 2019. At the recurrence (granular tissue located on the vaginal cuff that tested positive for endometroid adenocarcinoma, the same cancer diagnosed in 2019) radiation therapy was advised. I had 25 sessions of external pelvic radiation and 2 sessions of internal (brachytherapy). As result of the radiation I need to use a dilator likely for the rest of my life to keep the vagina in good health. Whenever I use the dilator and a vaginal moisturizer (also needed) I am reminded of the cancer and the surgery. While this is not as uncomfortable and painful on a daily basis as @bobette1 describes my pelvic floor was rearranged by the hysterectomy as were my intestines and so I do have discomfort with some movements.

Working with a pelvic floor physical therapist has helped a lot with all of this. I also worked with a trainer at my gym who helps me keep in good shape.

I write all of this to encourage you that it could be that your vulva may change and it will likely be an adjustment for you. I don't like the changes but I am learning to live with them. You also don't have to like your changes either but I can assure you that with Mayo Clinic Connect you will get lots of compassion and support that will help.