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CLIPPERS: Looking to connect with others
Autoimmune Diseases | Last Active: Dec 7 10:15pm | Replies (323)Comment receiving replies
@kristyinoregon If this is something new for you and you have other strange things happening, you’ll want to let your doctor know. Clippers is so different for everyone. It could be a lower prednisone dose, or a CellCept reaction, or nothing at all. But check it out! Maybe you could monitor over the weekend and if you’re still concerned, call your doctor. But, right now, watch a good TV show or read a good book and get a good night’s sleep.
What do you think the doctor might say?
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Hello Becky,
Thanks for the “hug” and your response. Yes, it’s new and I did send a note to my neurologist, ahead of my already scheduled appointment on this coming Monday. I am not sure what she will say, but I started tracking frequency, intensity, time of day. It is still quite mild, and I am thankful for that. Hopefully it will not get worse. I actually have a number of questions for my doctor. I am hoping she has answers. The effects of CLIPPERS are so varied; I wish there was a “What to expect when you have CLIPPERS” book, but suppose since the T2Flair (lesions) are spread out in the Central PONS, the variation of symptoms/effects are infinitely larger than a crapshoot. I am really looking forward to my next MRI. Last time it showed nothing new, a pause in progression? Hoping to see if the Prednisone is actually healing, as I have read it can do. I am hopeful.